Curriculum standards
Curriculum standards
Advanced Training in Palliative Medicine (Paediatrics & Child Health)
Entrustable Professional Activities
LG 8: Longitudinal care, including management of transitions across developmental ages and stages
Longitudinal care, including management of transitions across developmental ages and stages
Manage and coordinate longitudinal care of patients with malignant and non-malignant conditions across developmental ages and stages
This activity requires the ability to:
- describe the importance of developmental ages and stages in health care
- describe the difference between chronological and developmental ages as relevant to children with serious illnesses
- consider the changing needs of children with life-limiting illnesses as they grow and develop
- facilitate and support transitions between teams and settings as patients11 grow and develop
- collaborate with other health care providers
- facilitate continuity of care
- facilitate patients’ self-management and self-monitoring
- engage with the broader health policy context
Professional practice framework domain
Medical expertise
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- consider patients’ chronological and developmental ages during clinical assessments and formulation of management plans
- regularly re-assess approaches to clinical assessment and management over time
- elicit contributions of patients, families, whānau, and/or carers for needs assessments and care planning over time
- consider appropriate timing of transition between services and teams, including neonatal to general paediatric teams, and paediatric to adult settings
Requires some supervision
Possible behaviours of a trainee who needs some supervision to perform this activity
The trainee may:
- recognise the need for transition between services and teams, and participate in transition planning
Communication
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- use communication that is appropriate for the age and developmental stage of patients, recognising this may change over time
- document and communicate changes in care plans as patients grow and develop
- use assistive technologies for patients whose speech and language is impacted by underlying medical conditions
- be curious and ask families and/or carers to interpret emotions, values, likes, and dislikes for patients who are nonverbal or have limited communication
- stage conversations and processes of transition, with overlap between services where possible
- conduct comprehensive verbal and written handovers when transitioning patients between settings and medical teams
Requires some supervision
Possible behaviours of a trainee who needs some supervision to perform this activity
The trainee may:
- actively elicit patients’ specific language and communication needs wherever possible
- develop strategies to meet patients’ changing developmental needs over time
- document and share insights about patients’ and families’ changing needs with relevant care providers to optimise and personalise care over time
Quality and safety
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- evaluate and explain the reasons and processes around transitioning between care settings and teams due to age
- analyse adverse incidents and sentinel events to identify system failures and contributing factors when transitioning between care settings and teams
- identify evidence-based practice gaps using clinical indicators, and implement changes to improve patients’ outcomes when transitioning between care settings and teams
Requires some supervision
Possible behaviours of a trainee who needs some supervision to perform this activity
The trainee may:
- participate in continuous quality improvement processes and clinical audits on chronic disease management
- identify activities that may improve patients’ quality of life
Teaching and learning
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- regularly evaluate personal clinical practice around assessing and managing patients at chronologically and developmentally appropriate levels
- seek feedback on own clinical practice
- address gaps in knowledge and skills through self-directed learning and continuing professional development
- supervise junior colleagues in managing patients according to their chronological and developmental ages and stages, re-assessing as changes occur
- use teaching opportunities arising from encounters incorporating age and developmental assessment
Requires some supervision
Possible behaviours of a trainee who needs some supervision to perform this activity
The trainee may:
- use clinical practice guidelines for management of chronic diseases in children
- participate in intra- and inter-team education around children’s changing developmental needs
Research
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- apply relevant research literature and evidence-based guidelines to clinical practice in managing patients who transition between care settings and teams based on age
- support and participate in research to enhance care for patients who encounter transitions in care settings and teams
Requires some supervision
Possible behaviours of a trainee who needs some supervision to perform this activity
The trainee may:
- efficiently search literature for evidence of best practice in developmentally appropriate care of patients with palliative care needs
- recognise appropriate use of review articles
Cultural safety
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- demonstrate effective and culturally safe communication and care for Māori and Aboriginal and Torres Strait Islander peoples and members of other cultural groups when considering ages and stages of development and transitions in care settings and teams
- use professional interpreters, health advocates, family or community members to assist in communication with patients, and understand the potential limitations of each
Requires some supervision
Possible behaviours of a trainee who needs some supervision to perform this activity
The trainee may:
- provide culturally sensitive chronic disease management for children with palliative care needs
- facilitate appropriate use of interpreter services and translated materials
Ethics and professional behaviour
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- respect the roles and expertise of other health professionals, including those across other care settings and teams
- use processes for the release and exchange of health information when patients are transitioning between care settings and teams
Requires some supervision
Possible behaviours of a trainee who needs some supervision to perform this activity
The trainee may:
- share information between relevant service providers
- acknowledge and respect the contribution of health professionals involved in patients’ care
Judgement and decision making
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- implement a stepwise process in the management of transition between care settings and teams, with appropriate handovers
- recognise patients’ and their families’, whānau, and/or carers’ needs in terms of both internal resources and external support on a longitudinal health care journey involving the changing needs of a growing and developing child
Requires some supervision
Possible behaviours of a trainee who needs some supervision to perform this activity
The trainee may:
- recognise personal limitations in caring for patients with changing needs, and seek help in an appropriate way when required
Leadership, management, and teamwork
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- coordinate whole-person care through involvement in all stages of patients’ care journeys as they grow and develop
- work effectively within multidisciplinary teams across and between services to manage patients who may have changing needs as they grow and develop
Requires some supervision
Possible behaviours of a trainee who needs some supervision to perform this activity
The trainee may:
- participate in multidisciplinary care for patients with chronic diseases and disabilities, including care transitions between health care facilities and home, as appropriate to patients’ context
Health policy, systems, and advocacy
Ready to perform without supervision
Expected behaviours of a trainee who can routinely perform this activity without needing supervision
The trainee will:
- maintain good relationships with health agencies and services
- apply the principles of efficient and equitable allocation of resources to meet individual, community, and national health needs when providing care to patients who have changing needs as they grow and develop